We were hit by a ton of bricks when we discovered our perfectly healthy, 9-month-old baby girl, had a long-developing heart failure and needed a heart transplant to survive. I am Alexa LeMoine. Kayla is my daughter. Born on August 09, 2012, Kayla was diagnosed with Dilated Cardiomyopathy in May, 2013. It has been a shock to our family: Todd, Alexa, Kian, and, of course, Kayla.
Two and a half weeks after a perfectly normal 9-month “well-baby” doctor’s visit, we took Kayla to the ER with what seemed like a bad illness. A chest x-ray revealed she had an enlarged heart, and, after a long weekend at Rady Children’s Hospital, she was flown to UCLA Medical Center to be evaluated by their pediatric cardiology team. We learned that we saved her life taking her to the ER when we did because she might not have survived another couple of days.
We were fortunate enough to receive a heart transplant faster than anticipated. Kayla’s condition was severe enough that she needed to wait at the hospital until she received a heart. Now, with the new heart inside her, we need to live in LA for three months before returning home to San Diego, so the doctors can keep a close eye on her.
As shocking as all of this has been, we have developed not just hope, but confidence that Kayla will be able to live a full and happy life again. Thank you all for your love, compassion, and support. Living with a heart transplant is an infinite responsibility that requires constant medication and care. Below is a description of how COTA is helping us, in addition to families with similar situations.
How COTA is Helping You Help
With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. They, along with friends and family, are using this site as well as special fund raising events to raise funds for COTA in honor of transplant patients like local baby, Kayla LeMoine.
The doctors at UCLA Medical Center in Los Angeles, California, have recommended a life-saving heart transplant. An estimated $75,000 is being raised by San Diego volunteers.
WE GOT THE BEAT!
Concert, Dinner & Silent Auction
Benefiting Children’s Organ Transplant Association in honor of
Kayla Jane LeMoine
Saturday, October 12, 2013